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Printable Handouts
Navigable Slide Index
- Introduction
- How do people live with their impairment
- Plan of lecture
- Manuscript cover photo (1)
- Manuscript cover photo (2)
- Manuscript cover photo (3)
- Changes in the consciousness of the disabled
- Disability is not simply a physical affair
- Paralysis effect on thoughts
- Individuals with differing experiences
- Not being able to get beyond the injury
- The injury as a challenge
- Accepting the injury
- Is the absence of a feeling, a feeling?
- Describing the feeling of absence of feeling
- Restitution of normality
- Viewing the body as a whole
- The disability becomes a norm
- A successful adaptation to the disability
- Embodied pain
- Dealing with the pain
- My friend the pain
- New ways of moving
- New tasks to learn- bowel care
- New tasks to learn- wheeling
- The big idea
- Absence of accessibility
- Impairment and disability
- Individual and social models
- Getting an alternative possibility (1)
- Getting an alternative possibility (2)
- Self and others
- Reverend Albert Bull
- A sense of intention to act on the world
- The body as aesthetic presence
- An aesthetic to the wheelchair (1)
- An aesthetic to the wheelchair (2)
- Being comfortable with the injury
- Summary
Topics Covered
- Spinal cord injury
- Narratives
- Living without sensation, movement or continence
- Resilience
- Social and medical model of disability
- Phenomenology
Talk Citation
Cole, J. (2011, October 27). Spinal cord injury: some reflections on living with tetraplegia [Video file]. In The Biomedical & Life Sciences Collection, Henry Stewart Talks. Retrieved October 4, 2024, from https://doi.org/10.69645/DYLR6068.Export Citation (RIS)
Publication History
Financial Disclosures
- Prof. Jonathan Cole has not informed HSTalks of any commercial/financial relationship that it is appropriate to disclose.
A selection of talks on Neuroscience
Transcript
Please wait while the transcript is being prepared...
0:00
What's it like to live without movement or feeling below the neck?
What's it like to be incontinent?
What's it like, that despite having no feeling
from the body, one still may feel pain in it?
But because one has no feeling in it, the body can no longer protect itself
and you have to tend more towards the body itself.
I'm Jonathan Cole, I'm a clinical neurophysiologist.
In addition to medical work,
I also do some empirical research,
and I'm also interested in the lived experience of chronic neurological impairment.
To do this, I sit and listen to the stories of those with various problems.
In this lecture, I'm going to relate some of
the stories that people tell me of living with spinal cord injury.
Robert Murphy, who himself was paraplegic and then tetra or quadriplegic, wrote that,
"nobody has ever asked me what it's like to be a paraplegic and now a quadriplegic,
for this would violate all the rules of middle-class etiquette".
I thought it important to ask people exactly how they
lived, sometimes for many years, with spinal cord injury.
1:18
Medicine is often at loss and deficit.
My interest, however, is beyond that,
to how people reassemble their lives and find new ways
of living with, and yet somehow, beyond their impairment.
The spinal cord injury must be one of
the most sudden and severe losses of embodiment one could imagine.
Such changes in the body have profound effects on the sense of self.
Merleau-Ponty, the French phenomenologist, wrote that
"consciousness projects itself into the physical world and has a body...
[it] is in the first place not a matter of 'I think that' but of 'I can'."
"The body is a general medium for having a world."
What sort of world would one have when one loses the sense of agency,
the sense of the ability to act in and on the world.
I grouped the lecture into a series of different parts.