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Family-centred care for children with long-term conditions
Published on January 30, 2017 55 min
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Welcome to my lecture on "Family-Centred Care for Children with Long-Term Conditions". I am Professor Imelda Coyne, and I work at the School of Nursing and Midwifery, Trinity College Dublin, Ireland.
This slide provides a brief outline of what I will discuss today. I will explain the background to family-centred care. Where did it come from? And what is it? What does it consists of? And what are the key features of family-centred care? Are there any benefits to family-centred care? And then I will look at the changing roles, the implications for parents and healthcare professionals. I would also then discuss the challenges to family-centred care and how it's implemented in clinical practice. Now we'll look at what are the facilitators and what can promote family-centred care. And I will finish with an outlining of some strategies for the promotion of effective family-centred care.
So we start with, "Where did family-centred care come from?"
A long time ago, and it's nearly 30 years, research on maternal deprivation, by John Bowlby, demonstrated serious emotional, psychological, and developmental consequences of separation between mother and child. And then Spence and Robertson illustrated clearly the detrimental effects of hospitalization upon children. And James Robertson in 1958, he videotaped observations of a hospitalized child. And it was called: "A two-year-old goes to hospital". And he showed clearly the child's distress when separated from the mother. And he went around the UK showing these videos to healthcare staff and people who worked with children. And it had a big effect on people at the time, because what they realized was, to not allow the mother to stay or be with their child was not optimal at all. And this research led to the landmark "Platt Report" in 1959. It's always been referred to as the "Platt Report", but the actual title of it is "The Welfare of Children in Hospital". And it recommended unrestricted visiting for families, parents particularly, opportunities for mothers to stay overnight, and the importance of play and education for healthcare professionals.