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Living with congenital heart disease

Published on August 31, 2026   34 min

A selection of talks on Reproduction & Development

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0:00
Good day, everybody. It's a great pleasure to speak to you today about living with congenital heart disease. My name is Jolien Roos-Hesselink. I'm a cardiologist at Erasmus MC Rotterdam, The Netherlands.
0:17
Congenital heart malformations form 28% of all congenital malformations and with that are the most prevalent congenital malformations that occur. The estimates of birth prevalence show great variability. But generally it's accepted it's about 8 per 1000 live-born babies. If you want to make that a very simple quote, I would say just say one in hundred children is born with congenital heart disease.
0:49
In the last century, major breakthroughs in diagnostics and management have occurred. I think we all know that, for instance, the imaging techniques have improved echocardiography, new techniques, but also MRI and CT now have improved dramatically, and therefore, many more diagnoses can be made and also can be made correctly. But also in the treatment enormous breakthroughs have occurred. I think the introduction of the heart-lung machine, making it possible to operate on small children, I think that is one of the major breakthroughs in medicine in the past century. Our surgeons have started from scratch and they have done fantastic work.

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Living with congenital heart disease

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