Health care activism, community health, and patient-centered research
Published on January 31, 2023 38 min
A selection of talks on Pharmaceutical Sciences
Hello, my name is Thomas Concannon. I'm a Senior Policy Researcher at the RAND Corporation and I am an Assistant Professor of Medicine at Tufts University School of Medicine. My talk titled Healthcare Activism, Community Health, and Patient-Centered Research could alternatively be titled: how to make all biomedical research more outward-facing.
I have a few disclosures of research funding that is related to the content of this talk. All of these are non-profit or public funders and one of them is linked to industry. One line here, the PhRMA Foundation and PhRMA are linked to industry.
This is Peter Staley arrested in 1989 along with two colleagues from an organization called ACT UP at Burroughs Wellcome after protesting the release price of a new drug for treating HIV and HIV infection called AZT. The new drug was released by Burroughs Wellcome at $10,000 a year. At that time, that was an unheard-of price for drug treatment in particular for one that was potentially lifesaving and may seem quite a moderate price today. His comment after the demonstration was that they buckled referring to Burroughs Wellcome, and lowered the price by 20 percent. From then on, the industry said it's probably smarter to try to talk to activists and placate them as much as we can. Then six months later, FDA reduced the standard dose of AZT by half, effectively making the drug somewhat more affordable to people living with HIV.